Abstract
Objective
Children with special health care needs or chronic conditions are more likely to have
unmet health needs than other children. The purpose of this study was to use a community
engagement research strategy to assess the essential elements of care coordination
that can serve as the foundation for a system-wide care coordination model for children
with special health care needs.
Study Design
As part of a summit designed to review the status of pediatric care coordination within
the state of Arizona and a call to action, a qualitative descriptive study was conducted
to solicit anonymous feedback from 104 stakeholders (family, health care provider,
or community entity) on the strengths and areas of improvement in the current system
that provides care to Arizona children with special health care needs. Data were analyzed
using inductive content analysis.
Results
Five essential categories crucial to building an effective and seamless care coordination
model were extracted from the data: Communication, Insurance, Health Care Capacity, Provider Knowledge, and Family Education.
Conclusions
The results from this study can serve as the working foundation to build a system-wide
model for pediatric care coordination throughout the state. Providing care coordination
services involves many activities across a wide range of organizations and locations.
Research that is inclusive of community stakeholders can determine essential components
for building a foundation for care coordination.
Key Words
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Biography
Annmarie A. Lyles, Assistant Professor, Arizona State University, College of Nursing & Health Innovation, Phoenix, AZ.
Biography
Penny Morgan Overgaard, PhD student, University of Arizona, College of Nursing, Phoenix, AZ.
Biography
Grace L. Caputo, Professor of Pediatrics, Department of Child Health, University of Arizona College of Medicine–Phoenix, Phoenix, AZ.
Biography
Elizabeth Reifsnider, Nancy Melvin Professor and Associate Dean for Research, Honors Faculty, Arizona State University, College of Nursing & Health Innovation, Phoenix, AZ.
Article info
Publication history
Published online: April 13, 2017
Footnotes
Conflicts of interest: None to report.
Identification
Copyright
Published by Elsevier Inc. on behalf of the National Association of Pediatric Nurse Practitioners.
