Abstract
Introduction
The purpose of this evaluation was to compare parent and nurse use of an original
children's book about deoxyribonucleic acid (DNA) function as a potential aid in the
assent process in research. We also appraised parent's knowledge about DNA and the
use of genetic testing results.
Method
We used mixed qualitative and quantitative methods. Parent-child dyads were recruited
at an urban pediatric hospital. Knowledge of genetic concepts was assessed in adults
with use of the Genetic Knowledge Index. Participants read the book What DNA Does with a nurse or alone and participated in interviews with investigators. The content
of field notes from interviews was analyzed.
Results
Parent and child knowledge of DNA and gene function was generally poor but improved
in most cases, particularly after reading with the nurse.
Discussion
The evaluated book is appropriate as a teaching aid in the child assent process in
research or prior to genetic testing but should be presented by clinicians in most
cases.
Key Words
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Biography
Patricia Newcomb, Nurse Scientist, Texas Health Resources, Fort Worth, TX.
Biography
Rachel Hudlow, Registered Nurse, Irving, TX.
Biography
Joan Heilskov, Neonatal Nurse Practitioner and Doctoral Student, University of Texas at Arlington, Arlington, TX.
Biography
Cynthia Diane Martinez, Registered Nurse, Texas Health Resources, Fort Worth, TX.
Biography
Heather Le, Registered Nurse, Texas Health Resources, Fort Worth, TX.
Article info
Publication history
Published online: April 27, 2014
Footnotes
Conflicts of interest: None to report.
Identification
Copyright
© 2014 National Association of Pediatric Nurse Practitioners. Published by Elsevier Inc. All rights reserved.
