The purpose of this study was to explore the school-age child's perspective about living with a tracheostomy.
Design and methods
A qualitative design using phenomenological methods was used to describe and interpret the lived experiences of school-age children with a tracheostomy.
The perceptions of five children were explored, and three themes emerged: “I'm the only one,” “friends are helpful,” and “just tell them.”
Data indicated that encouraging friendships with other children enhances the well-being of the child with a tracheostomy. In addition, data suggested that when schoolmates understand the experiences of children with tracheostomies, they are supportive of the child. Nurse practitioners are in a unique position to assist the child with a tracheostomy in the development of peer networks.
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- Introduction.in: Benner P. Interpretive phenomenology: Embodiment, caring, and ethics in health and illness. Sage Publications, Thousand Oaks, CA1994
- Appendix A.in: Benner P. Tanner C.A. Chesla C.A. Expertise in nursing practice: Caring, clinical judgment, and ethics. 2nd ed. Springer Publishing Company, New York2009: 435-462
- The living tradition of interpretive phenomenology.in: Chan G. Brykczynski K. Malone R. Benner P. Interpretive phenomenology in healthcare research. Sigma Theta Tau International, Indianapolis, IN2010: 113-141
- Children who are medically fragile in North Carolina: Using Medicaid data to estimate prevalence and medical care costs in 2004.Maternal Child Health Journal. 2006; 10: 461-466
- Daily living with distress and enrichment: The moral experience of families with ventilator-assisted children at home.Pediatrics. 2006; 117: 48-60
- Through the looking glass: Children's perceptions of growing up with cystic fibrosis.Canadian Journal of Nursing Research. 1997; 29: 99-112
- Children's perceptions of homelessness.Pediatric Nursing. 2001; 27: 377-383
- ‘It's okay, it helps me to breathe’: The experience of home ventilation from a child's perspective.Journal of Child Health Care. 2006; 10: 270-282
- Technology-dependent children in the community: Definitions, numbers, and costs.Child: Care, Health, and Development. 2001; 27: 321-334
- Perceptions of play and leisure in junior school aged children with juvenile idiopathic arthritis: What are the implications for occupational therapy?.British Journal of Occupational Therapy. 2003; 66: 303-310
- Application of the Integrative Harmony Paradigm and Model.Issues in Comprehensive Pediatric Nursing. 2006; 29: 53-68
- Families' experiences of caring for technology-dependent children: A temporal perspective.Health & Social Care in the Community. 2005; 13: 441-450
- A qualitative descriptive study of the lived experiences of school-aged children with epilepsy.Journal of Pediatric Health Care. 2002; 16: 131-137
- Support network of adolescents with chronic disease: Adolescents' perspective.Nursing and Health Sciences. 2004; 6: 287-293
- Distal nursing.in: Chan G. Brykczynski K. Malone R. Benner P. Interpretive phenomenology in healthcare research. Sigma Theta Tau International, Indianapolis, IN2010: 41-58
- The child with a tracheostomy and gastrostomy: Parental stress and coping in the home—A pilot study.Pediatric Nursing. 2004; 30: 373-380
- Enabling young 'ventilator-dependent' people to express their views and experiences of their care in hospital.Journal of Advanced Nursing. 2000; 31: 1206-1215
- Technology-dependent children: Hospital vs. home Care—A technical memorandum.Government Printing Office, Washington, DC1987
- Parents', nurses', and educators' perceptions of risks and benefits of school attendance by children who are medically fragile/technology-dependent.Journal of Pediatric Nursing. 2002; 17: 345-353
Shabo, R.L. (1998). An interpretive study of school-age children's experiences with sickle cell disease (Doctoral dissertation). Available from ProQuest Digital Dissertations database. (Publication No. AAT 9913284)
Regena Spratling, Associate Professor, Department of Nursing, North Georgia College and State University, Dahlonega, GA.
Ptlene Minick, Associate Professor, Georgia State University, Atlanta, GA.
Myra Carmon, Associate Professor, Georgia State University, Atlanta, GA.
Published online: August 13, 2010
Conflicts of interest: None to report.
© 2012 National Association of Pediatric Nurse Practitioners. Published by Elsevier Inc. All rights reserved.