Journal of Pediatric Health Care
Volume 26, Issue 2 , Pages 118-125 , March 2012

The Experiences of School-Age Children With a Tracheostomy

This article was presented as a poster at the National Association of Pediatric Nurse Practitioners 30th Annual Conference, March 19-22, 2009, San Diego, CA.

  • Regena Spratling, PhD, MS, RN, CPNP

      Affiliations

    • Corresponding Author InformationCorrespondence: Regena Spratling, PhD, MS, RN, CPNP, Department of Nursing, North Georgia College and State University, Dahlonega, GA, 30597
  • ,
  • Ptlene Minick, PhD, RN
  • ,
  • Myra Carmon, EdD, RN, CPNP

References 

  1. Benner P. Introduction. In:  Benner P editors. Interpretive phenomenology: Embodiment, caring, and ethics in health and illness. Thousand Oaks, CA: Sage Publications; 1994;
  2. Benner P, Tanner CA, Chesla CA. Appendix A. In:  Benner P,  Tanner CA,  Chesla CA editor. Expertise in nursing practice: Caring, clinical judgment, and ethics. 2nd ed.. New York: Springer Publishing Company; 2009;p. 435–462
  3. Brykczynski KA, Benner P. The living tradition of interpretive phenomenology. In:  Chan G,  Brykczynski K,  Malone R,  Benner P editor. Interpretive phenomenology in healthcare research. Indianapolis, IN: Sigma Theta Tau International; 2010;p. 113–141
  4. Buescher PA, Whitmire JT, Brunssen S, Kluttz-Hile CE. Children who are medically fragile in North Carolina: Using Medicaid data to estimate prevalence and medical care costs in 2004. Maternal Child Health Journal. 2006;10(5):461–466
  5. Carnevale FA, Alexander E, Davis M, Rennick J, Troini R. Daily living with distress and enrichment: The moral experience of families with ventilator-assisted children at home. Pediatrics. 2006;117(1):48–60
  6. D'Auria JP, Christian BJ, Richardson LF. Through the looking glass: Children's perceptions of growing up with cystic fibrosis. Canadian Journal of Nursing Research. 1997;29(4):99–112
  7. DeForge V, Zehnder S, Minick P, Carmon M. Children's perceptions of homelessness. Pediatric Nursing. 2001;27(4):377–383
  8. Earle RJ, Rennick JE, Carnevale FA, Davis GM. ‘It's okay, it helps me to breathe’: The experience of home ventilation from a child's perspective. Journal of Child Health Care. 2006;10(4):270–282
  9. Glendinning C, Kirk S, Guiffrida A, Lawton D. Technology-dependent children in the community: Definitions, numbers, and costs. Child: Care, Health, and Development. 2001;27(4):321–334
  10. Hackett J. Perceptions of play and leisure in junior school aged children with juvenile idiopathic arthritis: What are the implications for occupational therapy?. British Journal of Occupational Therapy. 2003;66(7):303–310
  11. Haley J, Ratliffe C. Application of the Integrative Harmony Paradigm and Model. Issues in Comprehensive Pediatric Nursing. 2006;29(1):53–68
  12. Heaton J, Noyes J, Sloper P, Shah R. Families' experiences of caring for technology-dependent children: A temporal perspective. Health & Social Care in the Community. 2005;13(5):441–450
  13. Hightower S, Carmon M, Minick P. A qualitative descriptive study of the lived experiences of school-aged children with epilepsy. Journal of Pediatric Health Care. 2002;16(3):131–137
  14. Kyngas H. Support network of adolescents with chronic disease: Adolescents' perspective. Nursing and Health Sciences. 2004;6:287–293
  15. Malone R. Distal nursing. In:  Chan G,  Brykczynski K,  Malone R,  Benner P editor. Interpretive phenomenology in healthcare research. Indianapolis, IN: Sigma Theta Tau International; 2010;p. 41–58
  16. Montagnino BA, Mauricio RV. The child with a tracheostomy and gastrostomy: Parental stress and coping in the home—A pilot study. Pediatric Nursing. 2004;30(5):373–380
  17. Noyes J. Enabling young 'ventilator-dependent' people to express their views and experiences of their care in hospital. Journal of Advanced Nursing. 2000;31(5):1206–1215
  18. Office of Technology Assessment . Technology-dependent children: Hospital vs. home Care—A technical memorandum. Washington, DC: Government Printing Office; 1987;
  19. Rehm RS, Rohr JA. Parents', nurses', and educators' perceptions of risks and benefits of school attendance by children who are medically fragile/technology-dependent. Journal of Pediatric Nursing. 2002;17(5):345–353
  20. Shabo, R.L. (1998). An interpretive study of school-age children's experiences with sickle cell disease (Doctoral dissertation). Available from ProQuest Digital Dissertations database. (Publication No. AAT 9913284)

 Conflicts of interest: None to report.

PII: S0891-5245(10)00201-4

doi: 10.1016/j.pedhc.2010.07.005

Journal of Pediatric Health Care
Volume 26, Issue 2 , Pages 118-125 , March 2012