Journal of Pediatric Health Care
Volume 26, Issue 1 , Pages 27-36 , January 2012

Factors That Influence the Likelihood of Hiring a Health Care Advocate for a Chronically Ill Child

References 

  1. Alexander CS, Becker H. The use of vignettes in survey research. Public Opinion Quarterly. 1978;42:93–104
  2. Common Dreams News Center. (2001, February 4). Health care firms pamper rich patients. Retrieved from http://www.commondreams.org/headlines01/0204-01.htm
  3. Cowles LA, Lefcowitz MJ. Interdisciplinary expectations of the medical social worker in the hospital setting: Part 2. Health & Social Work. 1995;20:279–286
  4. Coutinho-Sledge, Y., Davis, S., Fillion, K., Hagan, B., Lee, M., Pierson, E., … Carney, J.K. (2007). Understanding the public's perception and knowledge of asthma. Abstract presented at the 135th Annual Meeting of the American Public Health Association Meeting, Washington, DC.
  5. Ell K, Vourlekis B, Xie B, Nedjat-Haiem FR, Lee PJ, Muderspach L, et al Cancer treatment adherence among low-income women with breast or gynecologic cancer: A randomized controlled trial of patient navigation. Cancer. 2009;115:4606–4615
  6. Freeman HP. Patient navigation: A community-based strategy to reduce cancer disparities. Journal of Urban Health. 2006;83:139–141
  7. Hankin JR, Starfield BH, Steinwachs DM, Benson P, Livingston G, Katz H. The relationship between specialized mental health care and patterns of primary care use among children enrolled in a prepaid group practice. Community and Mental Health. 1984;4:203–220
  8. Hurst M. Defining the field. 2008;Retrieved from http://www.slc.edu/healthadvocacy/Defining_the_Field.php
  9. Ireys HT, Anderson GF, Shaffer TJ, Neff JM. Expenditures for care of children with chronic illnesses enrolled in the Washington State Medicaid program, fiscal year 1993. Pediatrics. 1997;100:197–204
  10. Janicke, D.M., Finney, J.W., Bradbury, K., Boeving, C.A., & Riley, A.W. (1999). Determinants of children's primary care use: A prospective analysis. Paper presented at the Florida Conference on Child Health Psychology, Gainesville, FL.
  11. Janicke DM, Finney JW. Determinants of children's primary health care use. Journal of Clinical Psychology in Medical Settings. 2004;7:29–39
  12. Janvier A, Leblanc I, Barrington KJ. The best-interest standard is not applied for neonatal resuscitation decisions. Pediatrics. 2008;121:963–969
  13. Judd CM, McClelland GH, Ryan CS. Data analysis: A model comparison approach. New York, NY: Routledge/Taylor & Francis Group; 2009;
  14. Kelleher K, Starfield B. Health care use by children receiving mental health services. Pediatrics. 1990;85:114–118
  15. Lannin DR, Mathews HF, Mitchell J, Swanson MS, Swanson FH, Edwards MS. Influence of socioeconomic and cultural factors on racial differences in late-stage presentation of breast cancer. Journal of the American Medical Association. 1998;279:1801–1807
  16. Levy JC. Vulnerable children: Parents' perspectives and the use of medical care. Pediatrics. 1980;65:956–963
  17. Lilly CM. Diversity of asthma: Evolving concepts of pathophysiology and lessons from genetics. Journal of Allergy and Clinical Immunology. 2005;115:S526–S531
  18. Mailick M. Patient representatives programs: A social work perspective. Social Work Health Care. 1982;7:39–51
  19. Marsh G. The ombudsman: Functions and jurisdictions. Nursing Times. 1984;80:47–48
  20. Meyer EC, Snelling LK, Myren-Manbeck LK. Pediatric intensive care: The parents' experience. AACN Clinical Issues. 1998;9:64–74
  21. Meyer EC, Burns JP, Griffith JL, Truog RD. Parental perspectives on end-of-life care in the pediatric intensive care unit. Critical Care Medicine. 2002;30:226–231
  22. National Cancer Policy Board. Ensuring Quality Cancer Care. Institute of Medicine and Commission on Life Sciences. In:  Hewitt M,  Simone JV editor. National Research Council. Washington DC: National Academy Press; 1999;
  23. Newacheck PW, Halfon N. The association between mother's and children's use of physician services. Medical Care. 1986;24:30–38
  24. Rednova News . Baltimore firm provides health advocacy services. 2005;Retrieved from http://diagknowsis.com/news/PatientAdvocacyArticle.htm
  25. Riley AW, Finney JW, Mellits D, Starfield B, Kidwell S, Quaskey S, et al Determinants of children's health care use: An investigation of psychosocial factors. Medical Care. 1993;31:767–783
  26. Roetzheim RG, Pal N, Tennant C, Voti L, Ayanian JZ, Schwabe A, et al. Effects of health insurance and race on early detection of cancer. Journal of the National Cancer Institute. 1999;91:1409–1415
  27. Rosenthal R, Rosnow RL, Rubin DB. Contrasts and effect sizes in behavioral research: A correlational approach. New York, NY: Cambridge University Press; 2000;
  28. Salminen M, Isoaho R, Vahlberg T, Ojanlatva A, Kivela S. Effects of a health advocacy, counselling, activation programe on depressive symptoms in older coronary heart disease patients. International Journal of Geriatric Psychiatry. 2005;20:552–558
  29. Scholle SH, Agatisa PK, Krohn MA, Johnson J, McLaughlin MK. Locating a health advocate in a private obstetrics/gynecology office increases patient's receipt of preventive recommendations. Journal of Women's Health & Gender-based Medicine. 2000;9(2):161–165
  30. Schwartz L. Is there an advocate in the house? The role of health care professionals in health advocacy. Journal of Medical Ethics. 2002;28:37–40
  31. Shannon GR, Wilber KH, Allen D. Reductions in costly health care service utilization: Findings from the Care Advocate Program. Journal of the American Geriatrics Society. 2006;54:1102–1107
  32. Silber JH, Gleeson SP, Zhao H. The influence of chronic disease on resource utilization in common acute pediatric conditions. Archives of Pediatrics and Adolescent Medicine. 1999;153:168–179
  33. Spurrier NJ, Sawyer MG, Staugas R, Martin AJ, Kennedy D, Streiner DL. Association between parental perception of children's vulnerability to illness and management of children's asthma. Pediatric Pulmonology. 2000;29:88–93
  34. Starfield B, Van den Berg BJ, Steinwachs DM, Katz HP, Horn SD. Variations in utilization of health services in children. Pediatrics. 1979;63:633–641
  35. Stillion JM, Papadatou D. An examination of psychosocial issues in children and adolescents with terminal illness. American Behavioral Scientist. 2002;46:299–315
  36. Sutton S. Predicting and explaining intentions and behavior: how well are we doing?. Journal of Applied Social Psychology. 1998;28(15):1317–1338
  37. Tessler R, Mechanic D. Factors affecting children's use of physician services in a prepaid group practice. Medical Care. 1978;16:33–47
  38. Thomasgard M, Metz WP. The 2-year stability of parental perceptions of child vulnerability and parental overprotection. Journal of Developmental & Behavioral Pediatrics. 1996;17:222–228
  39. Tomlinson D, Bartels U, Hendershot E, Constantin J, Wrathall G, Sung L. Challenges to participation in paediatric palliative care research: A review of the literature. Palliative Medicine. 2007;21:435–440
  40. Ward A, Pratt C. Psychosocial influences on the use of health care by children. Australian and New Zealand Journal of Public Health. 1996;20:309–316
  41. Weinrich SP, Boyd MD, Weinrich M, Greene F, Reynolds WA, Metlin C. Increasing prostate cancer screening in African American men with peer-educator and client-navigator interventions. Journal of Cancer Education. 1998;13:213–219
  42. Welchman J, Griener GG. Health advocacy and professional associations: Individual and collective responsibilities. Nursing Ethics. 2005;12:296–304
  43. Woodward CA, Boyle MH, Offord DR, Cadman DT, Links PS, Munroe-Blum H, et al Ontario child health study: Patterns of ambulatory medical care utilization and their correlates. Pediatrics. 1988;82:425–434
  44. Wolfe BL. Children's utilization of medical care. Medical Care. 1980;23:1196–1207
  45. World Health Organization. World Health Report. Geneva, Switzerland: Author; 2000;

 Conflicts of interest: None to report.

PII: S0891-5245(10)00180-X

doi: 10.1016/j.pedhc.2010.06.016

Journal of Pediatric Health Care
Volume 26, Issue 1 , Pages 27-36 , January 2012