Journal of Pediatric Health Care
Volume 26, Issue 1 , Pages 16-26 , January 2012

Care Coordination in the Spina Bifida Clinic Setting: Current Practice and Future Directions

References 

  1. Brei TJ. The future of the multidisciplinary clinic. Scientific World Journal: TSW Urology. 2007;7:1752–1756
  2. Bunch WH, Cass AS, Bensman AS, Long DM. Modern management of myelomeningocele. St. Louis, MO: Warren H. Green; 1972;
  3. Caldado E, Loff C. The “failures” of spina bifida transdisciplinary care. European Journal of Pediatric Surgery- Short Reports. 2002;12:S51–S52
  4. Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities. (2007). October is spina bifida awareness month. Retrieved from http://www.cdc.gov/features/spinabifida.
  5. Dunleavy MJ. The role of the nurse coordinator in spina bifida clinics. Scientific World Journal: TSW Urology. 2007;7:1884–1889
  6. Kinsman SL, Levey E, Ruffing V, Stone J, Warren L. Beyond multidisciplinary care: A new conceptual model for spina bifida services. European Journal of Pediatric Surgery. 2000;10(suppl 1):35–38
  7. Lindeke LL, Leonard BJ, Presler B, Garwick A. Family-centered care coordination for children with special needs across multiple settings. Journal of Pediatric Health Care. 2002;16:290–297
  8. In:  Merkens MJ editors. Guidelines for spina bifida health care services throughout the life span. 3rd ed.. Washington, DC: Spina Bifida Association Professional Advisory Council; 2006;
  9. Palfrey JS, Sofis LA, Davidson EJ, Liu J, Freeman L, Ganz ML. The pediatric alliance for coordinated care: Evaluation of a medical home model. Pediatrics. 2004;113:1507–1516
  10. The Patient Protection and Affordable Care Act, H.R. 3590 (Public Law 111-148) (2010).
  11. Presler B. Care coordination for children with special health care needs. Orthopaedic Nursing. 1998;17:45–48
  12. Spina Bifida Association. (2010). Spina bifida clinics. Retrieved from http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2663669/k.690A/Spina_Bifida_Clinics.htm

 Funding for this study was provided by the Centers for Disease Control and Prevention, Office of Strategy and Innovation.

 Conflicts of interest: None to report.

PII: S0891-5245(10)00143-4

doi: 10.1016/j.pedhc.2010.06.003

Journal of Pediatric Health Care
Volume 26, Issue 1 , Pages 16-26 , January 2012