Journal of Pediatric Health Care
Volume 25, Issue 2 , Pages 87-95 , March 2011

Perceptions of Parenting Children With Type 1 Diabetes Diagnosed in Early Childhood

  • Arlene Smaldone, DNSc, CPNP, CDE

      Affiliations

    • Corresponding Author InformationCorrespondence: Arlene Smaldone, DNSc, CPNP, CDE, Columbia University School of Nursing, 617 W 168th St, New York, NY 10032
  • ,
  • Marilyn D. Ritholz, PhD

References 

  1. Achenbach T. Perspectives on development. In:  Achenbach T editors. Developmental psychopathology. New York: Wiley; 1982;p. 32–73
  2. Ahern JA, Grey M. New developments in treating children with insulin-dependent diabetes mellitus. Journal of Pediatric Health Care. 1996;10(4):161–166
  3. Block J, Buckingham B. Use of real-time continuous glucose monitoring technology in children and adolescents. Diabetes Spectrum. 2008;21:84–90
  4. Browning DM, Meyer EC, Truog RD, Solomon MZ. Difficult conversations in health care: Cultivating relational learning to address the hidden curriculum. Academic Medicine. 2007;82(9):905–913
  5. Cohen SY, Wamboldt FS. The parent-physician relationship in pediatric asthma care. Journal of Pediatric Psychology. 2000;25(2):69–77
  6. Dabelea D, Bell RA, D'Agostino RB, Imperatore G, Johansen JM, Linder B, et al. Incidence of diabetes in youth in the United States. JAMA. 2007;297(24):2716–2724
  7. Delamater, A. M., Jacobson, A. M., Anderson, B., Cox, D., Fisher, L., Lustman, P., … Wysocki, T. (2001). Psychosocial therapies in diabetes: Report of the Psychosocial Therapies Working Group. Diabetes Care, 24(7), 1286–1292.
  8. Diamond Project Group . Incidence and trends of childhood type 1 diabetes worldwide 1990-1999. Diabetic Medicine. 2006;23(8):857–866
  9. Garrison W, McQuiston S. Chronic illness during childhood and adolescence. Newbury Park, CA: Sage; 1989;
  10. Green A, Patterson CC. Trends in the incidence of childhood-onset diabetes in Europe 1989-1998. Diabetologia. 2001;44(Suppl. 3):B3–B8
  11. Kavanaugh M, Halterman JS, Montes G, Epstein M, Hightower AD, Weitzman M. Maternal depressive symptoms are adversely associated with prevention practices and parenting behaviors for preschool children. Ambulatory Pediatrics. 2006;6(1):32–37
  12. Kovacs M, Feinberg TL, Paulauskas S, Finkelstein R, Pollock M, Crouse-Novak M. Initial coping responses and psychosocial characteristics of children with insulin-dependent diabetes mellitus. Journal of Pediatrics. 1985;106(5):827–834
  13. Krahn GL, Hallum A, Kime C. Are there good ways to give ‘bad news'?. Pediatrics. 1993;91(3):578–582
  14. Krippendorf K. Content analysis: An introduction to its methodology. Newbury Park, CA: Sage; 1980;
  15. Laing SP, Swerdlow AJ, Slater SD, Botha JL, Burden AC, Waugh NR, et al. The British Diabetic Association Cohort Study, II: Cause-specific mortality in patients with insulin-treated diabetes mellitus. Diabetic Medicine. 1999;16(6):466–471
  16. Levetown M. Communicating with children and families: From everyday interactions to skill in conveying distressing information. Pediatrics. 2008;121(5):e1441–e1460
  17. Lincoln YS, Guba EG. Naturalistic inquiry. Beverly Hills, CA: Sage Publications; 1985;
  18. Lowes L, Lyne P. A normal lifestyle: Parental stress and coping in childhood diabetes. British Journal of Nursing. 1999;8(3):133–139
  19. Lowes L, Lyne P, Gregory JW. Childhood diabetes: Parents' experience of home management and the first year following diagnosis. Diabetic Medicine. 2004;21(6):531–538
  20. Mallare JT, Cordice CC, Ryan BA, Carey DE, Kreitzer PM, Frank GR. Identifying risk factors for the development of diabetic ketoacidosis in new onset type 1 diabetes mellitus. Clinical Pediatrics (Phila). 2003;42(7):591–597
  21. Meyer E, Sellers D, Browning D, McGuffie K, Solomon M, Truog R. Difficult conversations: Improving communication skills and relational abilities in health care. Pediatric Critical Care Medicine. 2009;10(3):352–359
  22. Miles M, Huberman A. Qualitative data analysis. Thousand Oaks, CA: Sage; 1994;
  23. Neuendorf K. The content analysis guidebook. Thousand Oaks, CA: Sage; 2002;
  24. Olsen DG, Swigonski NL. Transition to adulthood: The important role of the pediatrician. Pediatrics. 2004;113(3, Pt. 1):e159–e162
  25. Perry DF, Ireys HT. Maternal perceptions of pediatric providers for children with chronic illnesses. Maternal and Child Health Journal. 2001;5(1):15–20
  26. Rewers, A., Klingensmith, G., Davis, C., Petitti, D. B., Pihoker, C., Rodriguez, B.,…Dabelea, D. (2008). Presence of diabetic ketoacidosis at diagnosis of diabetes mellitus in youth: The Search for Diabetes in Youth Study. Pediatrics, 121(5), e1258–e1266.
  27. Rice P, Ezzy D. Rigour, ethics and sampling. In:  Rice P,  Ezzy D editor. Qualitative research methods: A health focus. South Melbourne: Oxford University Press; 1999;p. 29–50
  28. Roche EF, Menon A, Gill D, Hoey H. Clinical presentation of type 1 diabetes. Pediatric Diabetes. 2005;6(2):75–78
  29. Russell CK, Gregory DM. Evaluation of qualitative research studies. Evidence Based Nursing. 2003;6(2):36–40
  30. Sample section 504 plan & diabetes medical management plan for a student with diabetes. (n.d.). http://www.diabetes.org/advocacy-and-legalresources/discrimination/school/504plan.jsp
  31. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Mothers' experiences raising young children with type 1 diabetes. Journal of Specialized Pediatric Nursing. 2002;7(3):93–103
  32. Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Constant vigilance: Mothers' work parenting young children with type 1 diabetes. Journal of Pediatric Nursing. 2003;18(1):21–29
  33. Sullivan-Bolyai S, Rosenberg R, Bayard M. Fathers' reflections on parenting young children with type 1 diabetes. American Journal of Maternal and Child Nursing. 2006;31(1):24–31
  34. Wegner SE, Lathren CR, Humble CG, Mayer ML, Feaganes J, Stiles AD. A medical home for children with insulin-dependent diabetes: Comanagement by primary and subspecialty physicians—convergence and divergence of opinions. Pediatrics. 2008;122(2):e383–387
  35. Weissberg-Benchell J, Wolpert H, Anderson BJ. Transitioning from pediatric to adult care: A new approach to the post-adolescent young person with type 1 diabetes. Diabetes Care. 2007;30(10):2441–2446

 Conflicts of interest: none to report.

 Supported by National Institutes of Health/National Institute of Nursing Research grant No. 5P20 NR007799 (Arlene Smaldone, DNSc, CPNP, CDE, principal investigator of project pilot).

PII: S0891-5245(09)00277-6

doi: 10.1016/j.pedhc.2009.09.003

Journal of Pediatric Health Care
Volume 25, Issue 2 , Pages 87-95 , March 2011