Starting HIV-positive Babies on Antiretroviral Treatment: Perspectives of Mothers in Soweto, South Africa
published online 26 October 2009. Corrected Proof
Abstract
Introduction
Timely and effective initiation of antiretroviral treatment for babies infected with the human immunodeficiency virus (HIV) is critical. Mothers' perspectives on the health care and treatment of their HIV-positive babies could affect how they engage with health care.
Method
A convenience sample of HIV-positive mothers was interviewed using qualitative methods. Thematic analysis was used to identify themes significant for participants as well as those relevant to health service provision.
Results
These mothers seemed relatively well-informed and positive regarding their baby's care and treatment, but their understanding and practice was influenced by their own experience, observations, and fears, as well as the views of others. Having a baby on antiretroviral treatment improved their own health care motivation, but the daily reminder that it provided of the baby's status and still possible death and the prospect of their own death constituted a heavy emotional burden.
Discussion
The study highlights the complexity, ambiguity, and interlocking nature of the mothers' understandings, attitudes, and concerns. This contrasts with the often fairly one-dimensional nature of communication by health care providers and highlights the need to engage more comprehensively with mothers.
Correspondence: Ray Lazarus, MA, 20 22nd St, Menlo Park, South Africa, 0081.
This study was made possible by the support of the American People through the United States Agency for International Development (USAID). The findings of this study are the sole responsibility of the authors and do not necessarily reflect the views of USAID or the United States Government.
Ray Lazarus was formerly employed and Helen Struthers and Avy Violari are currently employed at the research and service site at which this study was carried out. None of the authors has financial or potential conflicts of interest.
ABSTRACT