Starting HIV-positive Babies on Antiretroviral Treatment: Perspectives of Mothers in Soweto, South Africa

Abstract 

Introduction

Timely and effective initiation of antiretroviral treatment for babies infected with the human immunodeficiency virus (HIV) is critical. Mothers' perspectives on the health care and treatment of their HIV-positive babies could affect how they engage with health care.

Method

A convenience sample of HIV-positive mothers was interviewed using qualitative methods. Thematic analysis was used to identify themes significant for participants as well as those relevant to health service provision.

Results

These mothers seemed relatively well-informed and positive regarding their baby's care and treatment, but their understanding and practice was influenced by their own experience, observations, and fears, as well as the views of others. Having a baby on antiretroviral treatment improved their own health care motivation, but the daily reminder that it provided of the baby's status and still possible death and the prospect of their own death constituted a heavy emotional burden.

Discussion

The study highlights the complexity, ambiguity, and interlocking nature of the mothers' understandings, attitudes, and concerns. This contrasts with the often fairly one-dimensional nature of communication by health care providers and highlights the need to engage more comprehensively with mothers.

Key words: HIV, infants, mothers, antiretroviral treatment