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Journal of Pediatric Health Care
Volume 24, Issue 5
, Pages 286-291
, September 2010
Including the Perspective of the Adolescent in Palliative Care Preferences
References
- . Ways of coping with cystic fibrosis: Implications for treatment adherence. Disability Rehabilitation. 2001;23:315–324
- . Coping with cystic fibrosis. Journal of the Royal Society of Medicine. 2003;43:42–50
- . End of life care for adult cystic fibrosis patients: Facilitating a good enough death. Journal of Cystic Fibrosis. 2005;4:249–257
- In: Carter B, Levetown M editor. Palliative care for infants, children, and adolescents: A practical handbook. Baltimore, MD: Johns Hopkins University Press; 2004;
- . Sick girl speaks. New York: iUniverse, Inc; 2007;
- ELNEC (End-of-Life Nursing Education Consortium) (2001). Module 1: Introduction to pediatric palliative care nursing. The American Association of Colleges of Nursing, City of Hope National Medical Center.
- . Care of the dying adolescent: Special considerations. Pediatrics. 2004;113:381–388
- . Terminal illness and death: Clinical pastoral care for hospitalized children and their families. New York: Paulist Press; 1987;
- . Implementation of a palliative care team in a pediatric hospital. Journal of Pediatric Health Care. 2009;23:126–131
- . Module 3-Activity 6: Special considerations of adolescents: Decision Making. The Initiative for Pediatric Palliative Care Curriculum (IPPC). Newton, MA: Education Development Center, Inc; 2003;
- In: Jonsen A, Siegler M, Winslade W editor. Clinical ethics: A practical approach to ethical decisions in clinical medicine. 4th ed.. New York: McGraw-Hill Book Co; 1998;
- . Adolescence. In: Hay W, Levin M, Sondheimer J, Deterding R editor. Current pediatrics diagnosis and treatment pediatrics. 19th ed.. New York: McGraw-Hill Book Co; 2007;p. 111–113
- . Who will speak for me? Improving end-of-life decision-making for adolescents with HIV and their families. Pediatrics. 2009;123:e199–206
- . Kitchen table wisdom. (pp. 143–144) New York: Berkley Publishing Group; 2006;
Conflicts of interest: None to report.
PII: S0891-5245(09)00210-7
doi: 10.1016/j.pedhc.2009.07.001
© 2010 National Association of Pediatric Nurse Practitioners. Published by Elsevier Inc. All rights reserved.
« Previous
Next »
Journal of Pediatric Health Care
Volume 24, Issue 5
, Pages 286-291
, September 2010
