Journal of Pediatric Health Care
Volume 23, Issue 1 , Pages 37-48 , January 2009

Transition of the Chronically Ill Youth With Hemoglobinopathy to Adult Health Care: An Integrative Review of the Literature

  • Rosalind Bryant, MN, APRN-BC, PNP

      Affiliations

    • Corresponding Author InformationCorrespondence: Rosalind Bryant, MN, APRN-BC, PNP, 6621 Fannin St, Houston, TX 77030-2399.
    • ,
  • Teresa Walsh, PhD, RN-C

References 

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  2. American Academy of Pediatrics , American Academy of Family Physicians, & American College of Physicians-American Society of Internal Medicine . A consensus statement on the health care transitions for young adults with special health care needs. Pediatrics. 2002;110:1304–1306
  3. Anie KA, Telfair J Sickle Cell Disease Transition Study Working Group. Multi-site study of transition in adolescents with sickle cell disease in the United Kingdom and the United States. International Journal of Adolescent Medical Health. 2005;17:169–178
  4. Betz CL, Redcay G. Dimensions of the transition service coordinator role. Journal of the Society of Pediatric Nurses. 2005;10:49–59
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  6. Blum R, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, et al. Transition from child-centered to adult health care systems for adolescents with chronic conditions: A position paper of the Society for Adolescent Medicine. Journal of Adolescent Health. 1993;14:570–576
  7. Boyle MP, Farukhi Z, Nosky ML. Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatric Pulmonology. 2001;32:428–436
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  9. Christian BJ, D'Auria JP, Fox LC. Gaining freedom: Self-responsibility adolescents with diabetes. Pediatric Nursing. 1999;25:255–269
  10. Fiorentino L, Datta D, Gentle S, Hall D, Harpin V, Phillips D, et al. Transition from school to adult life for physically disabled young people. Archives of Disabled Children. 1998;79:306–311
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  12. Hauser ES, Dorn L. Transitioning adolescents with sickle cell disease to adult-centered care. Pediatric Nursing. 1999;25:479–489Retrieved December 19, 2005, from http://weblinks3.epnet.com
  13. Lam P, Fitzgerald BB, Sawyer SM. Young adults in children's hospitals: Why are they there?. The Medical Journal of Australia. 2005;182:381–384
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  17. Reid GJ, Irvine MJ, McCrindle BW, Sananes R, Ritvo PG, Siu SC, et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics. 2004;113:e197–e205
  18. Reiss JG, Gibson RW, Walker LR. Health care transition: Youth, family, and provider perspectives. Pediatrics. 2005;115:112–120
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PII: S0891-5245(08)00124-7

doi: 10.1016/j.pedhc.2008.04.009

Journal of Pediatric Health Care
Volume 23, Issue 1 , Pages 37-48 , January 2009

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