Journal of Pediatric Health Care
Volume 22, Issue 2 , Pages 134-136 , March 2008

Children and Youth with Special Health Care Needs: Partnering with Families for Effective Advocacy

References 

  1. Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: Development and evaluation of a short screening instrument. Ambulatory Pediatrics. 2002;2:38–48
  2. Bronheim B, Tonniges T. Strengthening the community system of care for children and youth with special health care needs and their families: Collaboration between health care and community service systems (Georgetown University Center for Child and Human Development, Washington, DC). Retrieved November 30, 2007, from http://www.medicalhomeinfo.org/tools/gen_med_materials/BSOFwkbkfinal.pdf2004;
  3. Child and Adolescent Health Measurement Initiative. National Survey of Children with Special Health Care Needs 2005-2006 (Data Resource Center for Child and Adolescent Health Web site). Retrieved November 29, 2007, from http://cshcndata.org
  4. Limb SJ, McManus MA, Fox HB. Pediatric provider capacity for children with special health care needs: Results from a national survey of state Title V directors (Report, Maternal and Child Health Policy Research Center). Retrieved December 1, 2007, from http://www.mchpolicy.org/publications/pdfs/title5.pdf2001;
  5. Maternal and Child Health Bureau. Achieving and measuring success: A national agenda for children with special health care needs. Retrieved November 15, 2007, from http://mchb.hrsa.gov/programs/specialneeds/measuresuccess.htm2007;
  6. (Editors) Maternal Child Health Leadership Competencies Workgroup. Maternal Child Health Leadership Competencies. Retrieved November 16, 2007, from http://leadership.mchtraining.net2007;
  7. McManus P, Fox H, Limb S, Bell A. Promising state and regional approaches for extending access to pediatric subspecialty care and coordination with primary care (Report, Maternal and Child Health Policy Research Center). Retrieved December 1, 2007, from http://www.mchpolicy.org/practice/documents/StateandRegionalPromisingPractices_000.pdf2006;
  8. McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, et al. A new definition of children with special health care needs. Pediatrics. 1998;102(1 Pt 1):137–140
  9. Palfrey J. Child health advocacy. Baltimore: Johns Hopkins University Press; 2007;
  10. Tiedje LB. Thirty years of maternal-child health policies in the community. MCN, American Journal of Maternal Child Nursing. 2005;30:373–379

 Correspondence: Karen G. Duderstadt, PhD, RN, CPNP, University of California-San Francisco School of Nursing, Box 0606N411Y, San Francisco, CA 94143-0606; e-mail: karen.duderstadt@nursing.ucsf.edu

PII: S0891-5245(07)00464-6

doi: 10.1016/j.pedhc.2007.12.003

Journal of Pediatric Health Care
Volume 22, Issue 2 , Pages 134-136 , March 2008