Journal of Pediatric Health Care
Volume 22, Issue 3 , Pages 166-174 , May 2008

Views on Psychosocial Functioning: Responses from Children with Imperforate Anus and Their Parents

References 

  1. Berg-Nielsen TS, Vika A, Dahl AA. When adolescents disagree with their mothers: CBCL-YSR discrepancies related to maternal depression and adolescent self-esteem. Child: Care, Health and Development. 2003;29:207–213
  2. Berntsson LT, Kohler L. Quality of life among children aged 2-17 years in the five Nordic Countries (Comparison between 1984 and 1996). European Journal of Public Health. 2001;11:437–445
  3. Bonner MJ, Hardy KK, Guill AB, McLaughlin C, Schweitzer H, Carter K. Development and validation of the parent experience of child illness. Journal of Pediatric Psychology. 2005;31:310–321
  4. Brunner HI, Klein-Gitelman MS, Miller MJ, Trombley M, Baldwin N, Kress A, et al. Health of children with chronic arthritis: Relationship of different measures and the quality of parent proxy reporting. Arthritis and Rheumatism. 2004;51:763–773
  5. Chang PC, Yeh CH. Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Psychooncology. 2005;14:125–134
  6. Coakley RM, Holmbeck GN, Bryant FB. Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: An application of optimal data analysis. Journal of Pediatric Psychology. 2006;31:1084–1099
  7. Cremeens J, Eiser C, Blades M. Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health and Quality of Life Outcomes. 2006;4:58–65
  8. De Boer M, Grootenhuis M, Derkx B, Last B. Health-related quality of life and psychosocial functioning of adolescents with inflammatory bowel disease. Inflammatory Bowel Diseases. 2005;11:400–406
  9. De Los Reyes A, Kazdin AE. Measuring informant discrepancies in clinical child research. Psychological Assessment. 2004;16:330–334
  10. Diseth TH. Dissociation following traumatic medical treatment procedures in childhood: A longitudinal follow-up. Development and Psychopathology. 2006;18:233–251
  11. Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment. 2001;5:1–157
  12. Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood. 2001;84:205–211
  13. Eiser C, Morse R. Can parents rate their child's health-related quality of life? (Results of a systematic review). Quality of Life Research. 2001;10:347–357
  14. Foley D, Rutter M, Pickles A, Angold A, Maes H, Silberg J, et al. Informant disagreement for separation anxiety disorder. Journal of the American Academy of Child and Adolescent Psychiatry. 2004;43:452–460
  15. Hassink EA, Brugman-Boezeman AT, Robbroeckx LM, Rieu PN, van Kuyk EM, Wels PM, et al. Parenting children with anorectal malformations: Implications and experiences. Pediatric Surgery International. 1998;13:377–383
  16. Johnston CA, Steele RG, Herrera EA, Phipps S. Parent and child reporting of negative life events: Discrepancy and agreement across pediatric samples. Journal of Pediatric Psychology. 2003;28:579–588
  17. Kiely EM, Peña A. Anorectal malformations. In:  O'Neill JA editors. 5th ed.. Pediatric surgery. 2 vol:St. Louis: Mosby; 1998;
  18. Klassen AF, Miller A, Fine S. Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder. Child: Care Health and Development. 2006;32:397–406
  19. Klinnert MD, McQuaid EL, McCormick D, Adinoff AD, Bryant NE. A multimethod assessment of behavioral and emotional adjustment in children with asthma. Journal of Pediatric Psychology. 2000;25:35–46
  20. Lightfoot J, Wright S, Sloper P. Supporting pupils in mainstream school with an illness or disability: Young people's views. Child: Care, Health and Development. 1999;25:267–283
  21. Loonen HJ, Derkx BH, Koopman HM, Heymans HS. Are parents able to rate the symptoms and quality of life of their offspring with IBD?. Inflammatory Bowel Diseases. 2002;8:270–276
  22. Ludman L. Gut feelings: A psychologist's 20-year journey with paediatric surgeons. Journal of the Royal Society of Medicine. 2003;96:87–91
  23. Lukacz ES, Lawrence JM, Burchette RJ, Luber KM, Nager CW, Buckwalter JG. The use of Visual Analog Scale in urogynecologic research: A psychometric evaluation. American Journal of Obstetrics and Gynecology. 2004;191:165–170
  24. Luoma I, Tamminen T, Kaukonen P, Laippala P, Puura K, Salmelin R, et al. Longitudinal study of maternal depressive symptoms and child well-being. Journal of the American Academy of Child and Adolescent Psychiatry. 2001;40:1367–1374
  25. Martin JL, Ford CB, Dyer-Friedman J, Tang J, Huffman LC. Patterns of agreement between parent and child ratings of emotional and behavioral problems in an outpatient clinical setting: when children endorse more problems. Journal of Developmental and Behavioral Pediatrics. 2004;25:150–155
  26. Meade JA, Lumley MA, Casey RJ. Stress, emotional skill, and illness in children: The importance of distinguishing between children's and parents' reports of illness. Journal of Child Psychology and Psychiatry, and Allied Disciplines. 2001;42:405–412
  27. Nisell M, Öjmyr-Joelsson M, Frenckner B, Rydelius PA, Christensson K. How a family is affected when a child is born with anorectal malformation (Interviews with three patients and their parents). Journal of Pediatric Nursing. 2003;18:423–432
  28. Peña A, Hong A. Advances in the management of anorectal malformations. American Journal of Surgery. 2000;180:370–376
  29. Phares V, Lopez E, Fields S, Kamboukos D, Duhig AM. Are fathers involved in pediatric psychology research and treatment?. Journal of Pediatric Psychology. 2005;30:631–643
  30. Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115:626–636
  31. Randazzo KV, Landsverk J, Ganger W. Three informants' reports of child behavior: Parents, teachers, and foster parents. Journal of American Academy of Child and Adolescent Psychiatry. 2003;42:1343–1350
  32. Ronen GM, Streiner DL, Rosenbaum P. Health-related quality of life in children with epilepsy: Development and validation of self-report and parent proxy measures. Epilepsia. 2003;44:598–612
  33. Sung L, Young NL, Greenberg ML, McLimont M, Samanta T, Wong J, et al. Health-related quality of life (HRQL) scores reported from parents and their children with chronic illness differed depending on utility elicitation method. Journal of Clinical Epidemiology. 2004;57:1161–1166
  34. Sweeting H. Our family, whose perspective? (An investigation of children's family life and health). Journal of Adolescence. 2001;24:229–250
  35. Theunissen NC, Vogels TG, Koopman HM, Verrips GH, Zwinderman KA, Verloove-Vanhorick SP, et al. The proxy problem: child report versus parent report in health-related quality of life research. Quality of Life Research. 1998;7:387–397
  36. Upton P, Eiser C, Cheung I, Hutchings HA, Jenney M, Maddocks A, et al. Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health and Quality of Life Outcomes. 2005;3:22
  37. van Laerhoven H, van der Zaag-Loonen HJ, Derkx BH. A comparison of Likert scale and visual analogue scales as response options in children's questionnaires. Acta Paediatrica. 2004;93:830–835
  38. Yeh CH, Chang CW, Chang PC. Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports. Nursing Research. 2005;54:354–362

 Grants from the Samariten Foundation, the Solstickan Foundation, the Kempe Carlgrenska Foundation, and First of May Flower Annual Campaign supported this study.

PII: S0891-5245(07)00173-3

doi: 10.1016/j.pedhc.2007.04.016

Journal of Pediatric Health Care
Volume 22, Issue 3 , Pages 166-174 , May 2008

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